About the Hope Fund
Deemed as a “forgotten cancer” because of its rarity, sarcomas are cancers that start in bone, muscle, connective tissue, blood vessels or fat, and can be found anywhere in the body. One particularly aggressive subtype of sarcoma is called malignant peripheral nerve sheath tumor (MPNST). Unfortunately, MPNST is only minimally sensitive to chemotherapy and radiation and patients often face a prognosis with a five-year overall survival range of just 30 – 50%.
The Hope Fund for Sarcoma Research is a designated fund to raise awareness of sarcoma and to support cutting-edge research to treat MPNST.
Carrying the Torch of the Hope Fund
Jordan Meister had Hodgkins Lymphoma as a teenager, and beat it through radiation treatment in a clinical trial that set the standard treatment for this cancer. He went on to live a beautiful, successful life, inspiring all who know him. Jordan has always promoted the strength and creative fire within others. If you’ve been to the Harmons at City Creek (in Salt Lake City, UT) you can’t help but feel the positivity and joy he spreads as a Store Director.…
In April of 2021, Jordan was diagnosed with another cancer after invasive surgery that removed much of a tumor growing in his neck and shoulder. What remained of the tumor after surgery was on his carotid artery, so he then went through 6 weeks of daily radiation. Jordan has a rare cancer called Malignant Peripheral Nerve Sheath Tumor (MPNST) Sarcoma. There is no standard chemotherapy for this cancer, as there is not enough data to show a proven cure. This is why we decided to start this fund – for, with successful radiation, the survival rate of this cancer is 50% for 5 years. Without successful radiation treatment, there is no hope of longevity.
With Jordan’s passing in November of 2021, his wife and family believe that no family should have to go through this type of stress, which is why they created a fund in Jordan’s name. Please donate whatever you feel comfortable, as these funds will go to the research for MPNST treatment.
“Our goal is not only to raise awareness of MPNST, but also to work with the international scientific community to develop an effective cure that would offer hope to other patients and their families.”
-Marianne Bouldin, co-founder, The Hope Fund for Sarcoma Research