About the Hope Fund
Deemed a “forgotten cancer” because of its rarity, sarcomas are cancers that start in bone, muscle, connective tissue, blood vessels or fat, and can be found anywhere in the body. One particularly aggressive subtype of sarcoma is called malignant peripheral nerve sheath tumor (MPNST). Unfortunately, MPNST is only minimally sensitive to chemotherapy and radiation and patients often face a prognosis with a five-year overall survival range of just 30 – 50%.
The Hope Fund for Sarcoma Research is a designated fund established by Ken and Marianne Bouldin in honor of their daughter, Jennifer – a long-term survivor of MPNST – to raise awareness of sarcoma and support cutting-edge MPNST research.
“Our goal is not only to raise awareness of MPNST, but also to work with the international scientific community to develop an effective cure that would offer hope to other patients and their families.”
-Marianne Bouldin, co-founder, The Hope Fund for Sarcoma Research